Through the maze: a MUST have book for special needs resources

I was first handed this book when I had just found out my daughters diagnosis (Cerebral Palsy) and it helped a lot with resources, especially funding, which isn’t always easy to come across. My daughter is almost 6 and I still refer back to it.

Through the Maze covers the stages from diagnosis of a disability or developmental delay in childhood though to adulthood. It is a guide to the services available and a key to understanding the way the service system works. It is written by fellow parents of children with disability who have used many of the services outlined in the book.

NSW link here: http://www.acdnsw.org.au/index.php?option=com_content&view=article&id=122&Itemid=212
VIC link here: http://www.acd.org.au/information/ttm.htm

Image

A mothers invention to help her child walk – Upsee

A friend posted this yesterday and I LOVE it! I am waiting to see if they will ship to Australia and if it will fit my big girl!
What a brilliant invention and hats off to the mother who has made this happen.

The Upsee allows infants and small children to stand and achieve repetitive walking training with the support of an adult.
It includes a harness for the child, which attaches to a belt worn by an adult, and specially-engineered sandals that allow the parent and child to step simultaneously, leaving their hands free for play and other tasks.

Read the full article here:
http://www.dailymail.co.uk/femail/article-2588157/Harness-hope-Invention-mother-wheelchair-bound-son-helps-physically-impaired-children-walk-time.html#ixzz2wv6tbf1E

website to register: http://www.fireflyfriends.com/

 

Image

G-tube button pads, peg protectors

I found these online when my daughter got her peg and love them!
They keep the site clean and they can be washed and reused. They have saved me a lot of money as we started out using gauze from the hospital.
It’s great for keeping any tissue granulation under control and keeping the button nice and snug.

I also get asked about something to stop your child from playing/pulling on the button, so I’ve included a band/protector also.

They ship pretty quick from the US and you get a free wash bag on your first order.

Individual 2.5 inch G-Tube Pads Singles

Washable and Reuseable G-tube pads Sold in sets, or build your own. Single pads are made with flannel fabric on the outside with one layer of warm and natural batting in the middle with a plastic snap.

Image

G-tube/PEG tube Protector/ Belly Band

The G-tube/ PEG protector is made out of swimsuit/dance material. It is nice for protecting the site from having the tube /PEG pulled on. It is also a nice protection from hands that like to play with their site. Pull on.

Image

you can order them form here: http://store.juliasgtubepads.com/