New piece of equipment that excites me!! The Rockerski

My daughter has received a new piece of equipment that I have been wanting for a long time!
Variety Club were very generous to fund this for her.

My daughter cries a lot for hours and we have no idea why and the only things that soothe her are cuddles and rocking, but she is now 20kgs and I am only little so I can’t do this all day long. I spotted this in the Wonderland Rehab Catalogue and knew it would be perfect for her.

It’s great, fits most hi-lo chairs, wheelchairs and best of all, its portable. Amara does spend a bit of time in hospital and she is even more unsettled there, so this is perfect as we can throw it in the car and keep her happy when she’s there.

Anyone with a child who is unsettled a lot will LOVE this product.

Little sister has already started helping with the rocking 🙂

http://www.wonderlandrehab.com/catalogue.html

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Cerebral Palsy Artist creates paintings with a typewriter!!

I saw this on FB a few times but never clicked on the article until a friend sent it to me.
Once I watched the video I was amazed at these intricate artworks that were created with a typewriting by Paul Smith who has Cerebral Palsy! It must take him days, weeks even to create these images and the patience he must have…

Watch the video to see how amazing he is!  http://no-way.dailymegabyte.com/i-was-blown-image-really-was/

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Cerebral Palsy Misdiagnosed

I read this article yesterday and I am still gobsmacked about what happened to this woman!

She spent 30 years thinking she had Cerebral Palsy when she really had dopa-responsive dystonia (DRD), a rare muscle disorder that can be treated with one pill!!

She isn’t angry and doesn’t regret the surgery she had on her hips. My daughter had the same surgery when she was 2 years old and I remember the pain she went through and all I wanted to do was take it away for her. I am in awe of this woman, I know I would be angry and wanting to blame someone for the 30 years lost, but she doesn’t, she has no resentment or anger towards the doctor who made the mistake.

Read the article here: http://www.dailymail.co.uk/femail/article-3047729/Woman-spent-30-YEARS-fighting-debilitating-cerebral-palsy-discovers-misdiagnosed-symptoms-cured-just-one-pill.html

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NRMA holiday park, accessible holiday on behalf of the Starlight Foundation!

We were lucky enough to be given 5 days free accommodation through the Starlight Foundation and NRMA. It was a midweek stay just before Easter which was perfect as we missed the crowds 😊

We stayed at one of the NRMAS holiday parks, in Umina Beach, just near Gosford. 

The park is fantastic! There is so much to do for kids. There are jumping pillows, a water park, pools with a water slide and a playground, and you’re right on the beach.

The park is filled with duck, lorikeets and cockatoos which come and feed out of your hands.

There are many different types of accomodation to suit all types. We stayed in a villa that was accessible. The villa has an accessible bathroom. They provided us with a shower chair, and all the benches and light switches were situated at a lower height for wheelchairs. 

They also informed us when we checked in that they had a beach wheelchair we could use to take our daughter to the beach. We have never used one before. We have always struggled to get her down to the beach in the past and have just carried her, but she is getting to heavy for that. The beach wheelchair was so easy to push on the sand and once it hits water it floats!! We took her right out into the ocean. She loved the movement of the waves.

Right outside the park is a great accessible playground. I have included some photos of the equipment below. They had a merry go round that you could wheel your wheelchair onto, it was broken at the time unfortunately. They had signs at each station pictured below also, it was very well thought out.

We would like to thank the Starlight Foundation and NRMA for a great holiday, we would recommend the park to anyone looking for a seaside getaway 😊

http://www.oceanbeachholidaypark.com.au