NRMA holiday park, accessible holiday on behalf of the Starlight Foundation!

We were lucky enough to be given 5 days free accommodation through the Starlight Foundation and NRMA. It was a midweek stay just before Easter which was perfect as we missed the crowds 😊

We stayed at one of the NRMAS holiday parks, in Umina Beach, just near Gosford. 

The park is fantastic! There is so much to do for kids. There are jumping pillows, a water park, pools with a water slide and a playground, and you’re right on the beach.

The park is filled with duck, lorikeets and cockatoos which come and feed out of your hands.

There are many different types of accomodation to suit all types. We stayed in a villa that was accessible. The villa has an accessible bathroom. They provided us with a shower chair, and all the benches and light switches were situated at a lower height for wheelchairs. 

They also informed us when we checked in that they had a beach wheelchair we could use to take our daughter to the beach. We have never used one before. We have always struggled to get her down to the beach in the past and have just carried her, but she is getting to heavy for that. The beach wheelchair was so easy to push on the sand and once it hits water it floats!! We took her right out into the ocean. She loved the movement of the waves.

Right outside the park is a great accessible playground. I have included some photos of the equipment below. They had a merry go round that you could wheel your wheelchair onto, it was broken at the time unfortunately. They had signs at each station pictured below also, it was very well thought out.

We would like to thank the Starlight Foundation and NRMA for a great holiday, we would recommend the park to anyone looking for a seaside getaway 😊

http://www.oceanbeachholidaypark.com.au

                    

Childrens Silicon Medical Alert Bracelets – Affordable AUS supplier

A parent on a forum I am a member of posted her product she designed this morning. I love it!

They come in great colours, they are latex free and you can add which ever medical alert button is appropriate for your child. This is such a fantastic way to alert medical staff, teachers, day care workers, and anyone really! And all on the one band.
I really haven’t seen anything like this before on the market.

I have included a few images of the medical alert buttons, there are many more, so please go to the site and have a look.

They are very affordable and shipping is only $5 Australia wide.

http://happygums.com.au/

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http://happygums.com.au/

Waterway Babies, hydrotherapy in your bathroom

I had to reblog this post I put up last year as I can’t express enough how much I LOVE THIS PRODUCT!! my daughter has been using it now for 4 years and still loves it.

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I was introduced to this pool and neck ring by a lovely friend. My daughter loves the water so much I jumped on the website and ordered it straight away.

My daughter loved the pool from day 1 and I have never seen her move so much! Her legs were kicking like crazy. This is the only neck ring we have found that will actually float your child and keep their head above water. So you can actually let go of them and they will feel so free.
My daughter has now outgrown it, but we still use the ring at the beach and pool.

See photos below of my little model 🙂

They ship fast from the US and if you need any help Nancy is fantastic

http://www.waterwaybabies.com/

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Ozsale – Special Needs Wedgies on sale

My favourite sale site is selling the Special needs wedgies, I have blogged about them previously, but I love them so much I had to let you know they were on Ozsale. but be quick, they only have things on sale for a few days to a week.

They are shipped from the US, so might take a bit longer to get to you,

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http://www.ozsale.com.au/ItemsList.aspx?saleID=c281065f-d277-426c-a0a2-fdd915c816ee&ui=8#Guide+Craft/Toys

Jack’s Wheelchair song on the Wiggles

I have finally been sucked into the world of the Wiggles! My youngest daughter absolutely loves them. She knows all the moves and most of the words.

I have made sure I always point out other people and children in wheelchairs so she understands they are just like her sister and they are an important part of our community. She now sees a wheelchair and says “sister” 🙂

So when I first saw this clip on the wiggles “Jack’s wheelchair” I was over the moon!!

Jack Tori is a long-time fan of The Wiggles, and most recently Jack collaborated with The Wiggles to write the song “Jack’s Wheelchair Song” which features on our latest album “Wiggle House”. The song was written to help breakdown the stigma about being in a wheelchair. Jack has Cerebral Palsy just like my daughter.

you can buy it form iTunes here https://itunes.apple.com/au/album/wiggle-house!/id860494864

you can watch a youtube clip here https://www.youtube.com/watch?v=aU-IrS–Tkw

Accessible ice-skating – Amara on the ice!

I got this great idea from my favourite blog http://havewheelchairwilltravel.net/

I haven’t ice-skated in about 20 years so wasn’t really sure how this was going to work, but I am determined to let my daughter experience as many things as possible as her younger sister.

I rang ahead and made sure we could take the wheelchair on the ice and all I had to do was sign a waiver.
I got in for free with the companion card

I was pretty wobbly on the skates, but having the wheel chair helped stabilise me 🙂
I would suggest going early morning when its not so busy so you don’t run into anyone, unless you’re a confident skater.
And dress warm. You will be moving and get hot but the person in the wheelchair isn’t so they will get cold.
We went to our local rink at the Liverpool Catholic Club, they also have disco ice-skating at nights which I know my daughter will love. http://www.liverpoolcatholic.com.au/ICESKATING

They also had a playgroup on for an hour where the little ones can sit on chairs and build ice castles. They must have skates on also

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Amaras Starlight Wish

We have been lucky enough to be granted a starlight wish by the Starlight foundation for Amara! Amara loves the water, she is such a fish as it’s the only time she really feels relaxed and able to move freely, so we got to meet Evie the Dolphin at SeaWorld!
The staff at Seaworld were amazing, the trainer was very patient with us and waited till we got Amara in position for Evie to come and meet her 🙂 Was such a great experience for the whole family.

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Starlight also organised for us to visit 2 more theme parks in the Gold Coast, Wet n Wild and Dreamworld.

Wet n Wild was our next stop. She loved the wave pool. It wasn’t too rough but enough to get her senses going and make her smile 🙂

Next stop was Dreamworld where I was determined to get her on a ride! I must say the staff at Dreamworld were amazing. they have this policy that anyone can come to Dreamworld and have fun no matter what ability. When you first arrive you see guest services and they can do a ride assessment and tell you what rides are suitable. You also get given a pass to skip the queues and have a second turn on the rides 🙂
We managed to get Amara on the River Rapids and the Log Ride which she absolutely loved. It really made my day that she could experience a “rollercoaster ride”

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We flew Virgin Airlines who were amazing, as soon as they saw the wheelchair they came to help us. They even helped wheel our suitcases 🙂

A huge thank you to the Starlight Foundation for organising this trip for the whole family, they really went above and beyond to make the trip as smooth as possible and special.

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My new body scrub obsession! Franks

Sorry I have been very quiet over the past few months. Christmas took over my life! And we were preparing for our daughters Starlight wish, and going on a plane can take weeks to prepare for with a special needs child as you all know!

But todays post is for the mummy’s, or daddy’s 🙂

I love body scrubs, but have struggled to find a good rough one that does a great job. I had even started using used coffee beans ground up just to get the right roughness I want.
A lovely friend gave me Franks body scrub for my birthday and I am in love! Made from coffee beans so the texture is perfect and great for your skin, mixed in with other oils and lovely stuff to leave you body feeling great. My fav is the Cacao Coffee Scrub.
And best of all they do free shipping in Aus 🙂

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https://frankbody.com/

Watch cannabis knock out this child’s seizure in a matter of seconds

My daughter has status seizures, which are the big long ones that can’t be turned off without intubation (induced coma), so all this talk about Medicinal cannabis is great as I think it would be life saving for her. But who knows when it will become legal here in Australia???

watch the video of this girls seizure being stopped so quickly with no medical intervention!

http://www.examiner.com/article/watch-cannabis-knock-out-this-child-s-seizure-seconds

My special girl was featured on kidspot.com.au for WORLD CP DAY!!

On the 1st October 2014 it was World CP and I had the privilege of sharing my daughters story with the world!
I feel so honoured that we could do this, and the article was written so well by Sabrina.

It was quite emotional going down that road talking about the whole journey from start to finish. By the end I felt as though I hadn’t really shared enough of the positives she has brought into our lives as her story is quite long and complicated and hard to fit into a short interview. As most parents with special kids know, the happy moments can sometimes be rare and far between, which means we treasure them so much more.

But I love the story and hope you do also!

http://www.kidspot.com.au/a-familys-journey-with-cerebral-palsy/

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