Last Thursday we were lucky enough to be invited to the NSW Paediatric Palliative Care website launch which was officially launched by The Health Minister Jillian Skinner.
This website is a valuable resource for parents and clinicians. I think it will help break the barriers some families face when first hearing or thinking about palliative care. I know when we were referred we were a bit reluctant, but we were lucky enough to meet a lovely team at Sydney children’s hospital who really care about our daughter and the rest of our family. I know there are families who will get referred and may not have any support or a great image of Palliative care, I think this site will definitely help with that introduction.
We were also interviewed by Prime 7, you can see our interview here https://au.prime7.yahoo.com/n3/news/a/-/national/28261022/website-helps-inspiring-families-video/
And of course I had to get a photo with the Minister for Health 🙂
